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Children's Cancer and Leukaemia Group
The CCLG do a range of extremely useful information resources and leaflets that provide information for parents and General Practitioners on the diagnosis and treatment of a child with cancer.
These include:
- My child has a brain or spinal spinal tumour
- A range of materials to help members of the family including : Helping brothers and sisters,
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Provide financial, emotional and practical support. Speak to staff on your child's ward and they will refer you to your local Clic team.
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For teenagers and their families, providing emotional and practical support.
Concentrates on childhood cancer awareness and also the excellent Beads of Courage scheme that provides a great deal of pleasure and pride to children and young people going through treatment
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Supporting life limited or life threatened children and their families - this included children undergoing treatment for cancer.
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Online Support Groups
Rhabdoid families support group with the Grace Kelly Ladybird Trust
Online support group for parents and carers of children diagnosed with a rhabdoid tumour of any location. This group also welcomes parents of children with very rare or undiagnosed solid tissue tumours for whom alternative support groups do not exist.
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Facebook support group, providing easily accessible online friendship and support to parents of children with cancer. Please note this group is a closed group and only parents or primary carers of a child with cancer are able to join.
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Other groups available:
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Grandparents of children with cancer support group
A closed Facebook support group for grandparents of children with cancer.
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My kid has cancer - bereaved parents
A closed Facebook support group for parents following the death of their child from cancer. Only parents or primary carers of the deceased child or young person are able to join.
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There are also many excellent smaller childhood cancer charities also operate in local areas that provide a lot of emotional and practical support to the families of children undergoing treatment.
Useful contacts and information resources
For bereaved families
Help and support after the death of a child.
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Help and support for bereaved parents. It provides information and guidance on all aspects of losing a child.
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