Tobias

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Tobias' family are fighting to fundraise to give Tobias a chance of the future he deserves. He has exhausted treatment options on the NHS and future ground-breaking treatment comes at a huge price.

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Tobias Duncan- Hambolu was born on 28th September 2016. He is the sweetest, happiest little boy, who loves to cuddle and play, and brings so much joy to his mummy, Katharine, and his daddy, Isaac. When Toby was 8 weeks old, doctors found a lump in his stomach and he was eventually diagnosed with Infantile Fibrosarcoma. Toby has already had major surgery and the placement of a feeding tube. Unfortunately, the first chemotherapy did not work, and he grew 3 new tumours in a matter of weeks.  Toby has since been placed on a more intensive course of chemotherapy to which he has responded to so far.

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This is an exceptionally rare type of childhood tumour, and Toby’s tumour is behaving in a way that is much more aggressive that most cases of Infantile Fibrosarcoma. Of all the children in the UK that relapsed on initial treatment of this tumour type, ALL have gone on relapse again and did not survive.

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The chance of Toby relapsing, is extremely high, and if this occurs, the next options in the UK are bleak. He would be faced with either radical surgery with removal of major organs, or radiotherapy which could only buy time and is exceptionally damaging to such a young baby.

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There is a revolutionary medical trial taking place in the US and Spain, which uses a medication which directly targets the gene fusion that causes Toby's tumour. The trial has been getting very promising results, and could be vital for Toby. This ground-breaking immunotherapy will almost certainly be his best chance of a future and also help pave the way to help other children too.

 

So far 100% of children in his position have relapsed and not survived, something that is unthinkable for Toby. it just unthinkable for this beautiful little boy. Should Toby no longer need the funds, they will be used for general charitable purposes to fulfill the work of the Grace Kelly Ladybird Trust for childhood cancer awareness and research into rare solid tumours of childhood.

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